Wednesday, January 4, 2012


I just watched the documentary "Under Our Skin", which is about Lyme disease and the disgusting politics surrounding the insurance companies and medical boards (surprise) that prevent it from being properly treated.  One of my most favorite people in the universe has Lyme, and her perseverance has always been inspirational to me.  It's an important message about how biomedical research is just as susceptible to being stunted by corruption as any other major enterprise.

Consequently, watching these types of documentaries is incredibly depressing to me.  Though there is always a ray of hope at the end, I can't help but sink into guilt.  I am not earning my health, there are people so much worse off than I am that I must be faking it, I should be in toxicology or immunology or infectious disease instead of neuroscience, etc, etc...

H.K. is kind enough to remind me of what pitiful condition I am in without the right medication -- how dysfunctional I was before Remicade started to work a year and a half ago, the concern for what will happen when I can't take Remicade anymore, and that even though the pain is now benign and infrequent I have acquired all kinds of side effects.  One of them is being in grad school.  For which, though I complain (because that's where camaraderie comes from), I am so incredibly grateful...

Bring it on, 2012.


  1. you are NOT faking it. love you and thank you!! you rule.

  2. As a migraineur, I've got my fingers crossed that something you figure out will make my life better :)