When this thing began, I kept a journal - a medical log, rather - of the progression of the disease. Diagnoses, drugs, successful and destructive food combinations, endo- and colonoscopy photos... I thought I was going to discover some profound pattern in my body's behavior.
The Crohn's baby responded: fuck you and your predictably-repetitive-universe hocus pocus - I will ransack your preconceptions of bodily behavior and mobilize a stealth squadron of endothilial destroyers from your throat to your ileum, and you will never know my next move! ... And so I abnegated, and stopped.
Ten years later, having overcome denial and admitted that an MD-PhD will probably be my undoing, I'm PhD-bound. And I know that there are other Crohnies in the world who are doing the same thing, but there is no support network. There is no way to gauge how much give to take, or how much push to shove.
So here I am, once again making record of how this process proceeds. It is my hope that it will serve as a resource for some, and that it will inspire guidance from others.